4/26/23

Parkinson's in Ethiopia

The Parkinson's Patients Support Organization - Ethiopia (PPSO-E) is a non-governmental indigenous charity organization established in May 2011 by Kibra Kebede, a Parkinson’s patient who struggled to establish the organization due to the lack of information and the loss of social interaction and stigmatization that she faced. PPSO-E aims to support Parkinson's patients in Ethiopia and improve their quality of life. Their activities are grouped into three categories: awareness raising, capacity building, and care and support. PPSO-E raises awareness about Parkinson's through broadcasting on government and non-government-owned media, newsletters, magazines, and organizing meetings and events. They provide capacity building by training Parkinson's patients and caregivers, as well as other stakeholders, on Parkinson's disease and its management. PPSO-E provides care and support to Parkinson's patients through the provision of Parkinson's drugs, modern toilet construction, eye treatment and glass provision, walking apparatus support, day and night clothes, sugar, cooking oil, and sanitary materials, as well as consultation services for patients. PPSO-E faces challenges, such as a shortage of funds and a lack of commitment from the public. They aim to open a care center and expand to regions but currently do not have the funds to do so.

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